問卷調查研究 - 華語為母語的人士在加拿大面對癌症期間如何得到心理上的支援 Survey study to investigate the use of psychosocial services by Chinese-speaking individuals during their cancer journeys

 

誠邀癌症患者/康復者及其家屬填寫問卷

您好：

 

我是林芷瑩 Erica Lam，一位就讀於卡加里大學 (University of Calgary) 的心理系學生。本人正在進行一項問卷調查研究，希望了解以華語為母語的人士在加拿大面對癌症期間如何得到心理上的支援。

 

我們誠邀以下人士填寫需時10分鐘的問卷：

 

1. 你是一位以華語為母語的癌症患者 / 康復者 或 他們的直系家屬
2. 你已年滿18 歲或以上

如有需要，你可以找他人輸入資料。

 

完成問卷後，你會獲得一張價值 $10 的 Tim Hortons 禮品卡 。

 

問卷連結：https://survey.ucalgary.ca/jfe/form/SV_6idW33JR9dzIRXE

 

謹隨函附上這項研究的傳單。

 

如有任何查詢，可透過 erica.lam1@ucalgary.ca (郵件) 或 微信 eltyma18向林芷瑩 Erica Lam查詢。

Hello,

 

My name is Erica Lam, a student in the Department of Psychology at the University of Calgary. I am conducting a survey study to investigate the use of psychosocial services by Chinese-speaking individuals during their cancer journeys.

 

We are inviting the following individuals to fill out the 8- to 10-minute survey:

 

1. You are a patient/survivor whose mother tongue is Chinese OR their direct family member
2. Are 18 years of age or older

You can ask someone to help you input information into the survey if needed.

 

After completing the survey, you will receive a $10 Tim Hortons gift card.

 

Link to the survey: https://survey.ucalgary.ca/jfe/form/SV_6idW33JR9dzIRXE

 

Attached you will find a flyer about the study.

 

If you have any questions or concerns, please contact Erica Lam directly at erica.lam1@ucalgary.ca or via WeChat at eltyma18. Thank you for your attention. 

Yours sincerely,

Erica Lam

Research studies and surveys | October 2022

 Research studies and surveys | October 2022 

These studies are shared within the support group newsletter, Your Monthly Debrief.

 

1. Survey on patient perspectives on Active Surveillance  -  

1. Investigators: AnCan Virtual Active Surveillance Support Group, Active Surveillance Patients International, Prostate Cancer Support Canada, and The Active Surveillor Newsletter 

2. Eligibility:  

1. Must have been diagnosed with prostate cancer 

3. Purpose: to inform professional medical bodies and key influencers about our PATIENT views on the Active Surveillance treatment protocol 

 

2. Journey mapping radiation therapy in older adults with cancer through patient-reported outcomes 

1. Principle investigator: Dr. Jae-Yung Kwon at the University of Victoria 

1. Eligibility:  

1. must be a resident of BC 

2. over 65 y/o 

3. have received radiation therapy as a cancer treatment 

2. Purpose: to help create “journey maps” (visualizations of patients’ stories and healthcare service encounters over time) which will be used to help inform the development of resources for clinicians 

1. Incentive: $50 gift card 

 

3. COMPASS Study – Sexual quality-of-life questionnaire 

1. Principle Investigator: Dr. Bernard Lee, UBC and BC Cancer  

2. Eligibility:  

1. 40-75 y/o 

2. previous sexual experience with men 

3. diagnosis of prostate cancer 

4. currently on active surveillance, or previously treated with surgery, external beam radiation, or brachytherapy, with/without hormone therapy 

1. Purpose: to improve prostate cancer treatment outcomes for other queer men   

1. Incentive: 1 in 5 chance of winning a $100 USD gift card 

 

4. Managing your fear of cancer recurrence: A research study for Canadian family caregivers 

1. Principle Investigator: Dr. Sophie Lebel and Dr. Rinat Nissim (U Ottawa, UHN) 

2. Eligibility: 

1. Canadian women (18 y/o+) 

2. Provide unpaid support to an adult loved one (recently diagnosed with cancer, finished treatment and has not experienced recurrence) 

3. Worry that their loved one’s cacer may come back 

4. Willing to participate in online support group meetings with other women caregivers 

3. Purpose: to explore fear of cancer recurrence 

 

5. Cardiovascular and lifestyle risks in prostate cancer patients. 

1. Principle Investigator: Dr. Margot Davis, UBC and VCH Research Institute 

2. Eligibility: 

1. male aged 45+ with prostate cancer that was: 

2. diagnosed within the past year 

3. treated with ADT for the first time in the past 6 months 

4. will be treated with ADT for the first time within one month 

1. Purpose: To identify factors associated with the development of cardiovascular disease in men with prostate cancer 

 

6. iSTRIDE – A Distance-based, Randomized Controlled Trial for Reducing Sedentary Behavior among Prostate Cancer Survivors 

1. Principle Investigator: Dr. Linda Trinh, Univeristy of Toronto 

2. Eligibility: 

1. men diagnosed with prostate cancer 

1. 18+ y/o 

2. engaging in less than 150 minutes of physical activity a week 

3. not receiving radiation therapy 

1. Purpose: to develop an easy-to-use accessible, distance-based program to reduce sedentary behaviour and increase physical activity  in the hope of reducing side effects and improving quality of life for men with prostate cancer 

2. Incentive: $60 for participating in the entire study 

 

7. Investigating the impact of social supports, anxiety, depression, and coping on quality of life  in individuals with hereditary cancer conditions 

1. Principle Investigator: Diana Cooke, NUI Galway, Irish Cancer Society 

2. Eligibility: 

1. Have a confirmed hereditary cancer 

1. Purpose: To determine how social support, anxiety, depression, and coping may impact quality of life 

 

8. EXCEL: The EXercise for Cancer to Enhance Living Well (EXCEL) Study 

1. Principle Investigator: Dr. Nicole Culos-Reed, University of Calgary 

2. Eligibility: 

1. Undergoing or recovering from cancer treatment 

2. Rural or remote patients preferred 

1. Purpose: to implement exercise programs that allow rural and remote cancer patients to benefit from exercise as a self-management strategy to improve overall physical activity levels, health, and quality of life 

 

9. As always, active prostate cancer clinical trials in Canada may be found here 

1. Use the filters on the lefthand side of the page to further filter your results by province, age, study type, etc.  

邀請加拿大華裔前列腺癌康復者和照顧者參與研究 Chinese Canadian prostate cancer survivor and caregiver participants needed

研究項目參與邀請函 - 需要加拿大華裔前列腺癌倖存者和照顧者的參與

這項研究是關於什麼的？我們的研究團隊開發了一款旨在為前列腺癌患者提供線上隨訪護理的應用程序（線上隨訪護理）。在多倫多大學，我們正試圖找出這個應用程序如何能更好地支持處於前列腺癌生存階段的加拿大華人及其護理人員的健康。

誰有資格參加這項研究？如果你是華裔加拿大人的前列腺癌倖存者或照顧者，我們希望你能提供你接受前列腺癌隨訪康復護理的經驗，以及你希望通過線上診所獲得哪些支持。訪談的信息將被用來幫助設計一個線上護理診所，以支持接受後續護理的華裔加拿大人前列腺癌倖存者。你為這項研究提供的信息將被保密。

你將獲得每小時50加幣的報酬，作為對你同意接受采訪的感謝。如果您想要獲取更多信息，請參見所附的《倖存者和照顧者信息函》。

如果你有興趣參加這項研究，請通過電話或電子郵件與研究人員Ms. Karen Young聯繫。

電話：604-600-5870   電子郵件：kgm.young@mail.utoronto.ca

感謝你考慮為這個項目提供幫助!

Invitation to participate in a research project – Chinese Canadian prostate cancer survivor and caregiver participants needed

What is this study about? An application designed to virtually deliver follow-up care to people

with prostate cancer (virtual follow-up care) has been created. At the University of Toronto, we

are trying to find out how this application can better support the health of Chinese Canadian

people in the survivorship phase of their prostate cancer trajectory and their caregivers.

Who is eligible to participate in this study? If you are a Chinese Canadian prostate cancer

survivor or a caregiver, we would like your input on your experiences receiving prostate cancer

follow-up care and what support you would like to have through a virtual clinic. The information

from the interviews will be used to help design a virtual care clinic that can support Chinese

Canadian prostate cancer survivors receiving follow-up care. The information you provide for

this study will be kept private and confidential.

You will receive $50.00 per hour as a thank-you for agreeing to be interviewed. For more

information, please see the attached Letters of Information for Survivors and Caregivers.

If you are interested in participating in this study, please contact the study coordinator,

Ms. Karen Young, by phone or email at:

Phone: 604-600-5870

Email: kgm.young@mail.utoronto.ca

Thank you for considering to help with this project!

*****************************************************************************

Boston College BRCA Study

BC Men's BRCA Study (Facebook): https://www.facebook.com/BostonCollegeBrcaStudy/
BC Men's BRCA Study (Twitter): https://twitter.com/BRCAStudyBC
BC Men's BRCA (Confidential) Survey: https://bostoncollege.co1.qualtrics.com/

Prostate Cancer and Mental Health Survey - If I Were Tom

Why are we doing this study?

The UBC and Prostate Cancer Foundation BC are doing this survey to learn more about end-user perspectives on a range of prostate cancer-related health issues and the If I Were Tom website, including content satisfaction, overall functionality, and look. The results of this survey will guide and inform website updates, as well as contribute empirical understandings about the psychosocial prostate cancer needs of men and their families. 

Who can participate in this study?

To be able to participate in this study we require that you:

1.       Are 19 years old or older;

2.       Reside in Canada;

3.       Are a man experiencing or, have experienced prostate cancer, and

4.       Can read and complete a survey in English.

Participation includes the completion of an online questionnaire (head to http://www.ifiweretom.ca/ to check it out!), as well as some brief information about yourself. The survey will take approximately 10 minutes to complete and you will have the opportunity to enter a C$500 prize draw, even if you do not wish to complete the survey. 

You can also access the survey directly using this link: https://ubc.ca1.qualtrics.com/jfe/form/SV_bjG8J7TerXwXx3v

前列腺癌和性生活調查 Prostate Cancer and Sex Life Survey

Prostate Cancer Study from Australia 澳大利亞前列腺癌研究

One in three men have concerns about their sexual health (e.g. erectile dysfunction) after

prostate cancer treatment. Many men are reluctant to get help for their sexual concerns, and

when they do, often men do not continue with treatment.

To date there is little research to help us understand men’s concerns about their sexual

health after prostate cancer and how they prefer to address these concerns. Our online Men

and Sexual Health – Prostate Cancer study will explore men’s concerns about their sexual

health, what contributes to their decisions to seek support, and from whom they prefer to

receive this support. This is an international study which is supported by cancer control

organisations, health professionals, and universities in Australia, New Zealand, Canada and

Ireland.

The Men and Sexual Health - Prostate Cancer study is an online survey that will take

approximately 30 to 40 minutes of your time. The survey asks about your sexual concerns,

side effects after prostate cancer treatment, quality of life, decisions to use services, and the

services that you prefer.

If you are aged over 18 years, have had treatment for Prostate Cancer and would like to

share your experience and help other men affected by prostate cancer please type in the

following URL into your web browser. www.menandprostatecancer.org

In addition to this, in the survey we will ask your permission to contact you again to complete

another survey in 6 months and 12 months so that we can understand if you’re sexual

concerns and need for support services change over time.

Please note: If you are receiving this info from your local PCCN support group in Canada

please note that this is not a Prostate Cancer Canada led study. Prostate Cancer Canada

is not responsible for any personal or contact information you may provide to the study, nor

the results of the study.