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Research studies and surveys | October 2022

 Research studies and surveys | October 2022 

These studies are shared within the support group newsletter, Your Monthly Debrief.

 

1. Survey on patient perspectives on Active Surveillance  -  

1. Investigators: AnCan Virtual Active Surveillance Support Group, Active Surveillance Patients International, Prostate Cancer Support Canada, and The Active Surveillor Newsletter 

2. Eligibility:  

1. Must have been diagnosed with prostate cancer 

3. Purpose: to inform professional medical bodies and key influencers about our PATIENT views on the Active Surveillance treatment protocol 

 

2. Journey mapping radiation therapy in older adults with cancer through patient-reported outcomes 

1. Principle investigator: Dr. Jae-Yung Kwon at the University of Victoria 

1. Eligibility:  

1. must be a resident of BC 

2. over 65 y/o 

3. have received radiation therapy as a cancer treatment 

2. Purpose: to help create “journey maps” (visualizations of patients’ stories and healthcare service encounters over time) which will be used to help inform the development of resources for clinicians 

1. Incentive: $50 gift card 

 

3. COMPASS Study – Sexual quality-of-life questionnaire 

1. Principle Investigator: Dr. Bernard Lee, UBC and BC Cancer  

2. Eligibility:  

1. 40-75 y/o 

2. previous sexual experience with men 

3. diagnosis of prostate cancer 

4. currently on active surveillance, or previously treated with surgery, external beam radiation, or brachytherapy, with/without hormone therapy 

1. Purpose: to improve prostate cancer treatment outcomes for other queer men   

1. Incentive: 1 in 5 chance of winning a $100 USD gift card 

 

4. Managing your fear of cancer recurrence: A research study for Canadian family caregivers 

1. Principle Investigator: Dr. Sophie Lebel and Dr. Rinat Nissim (U Ottawa, UHN) 

2. Eligibility: 

1. Canadian women (18 y/o+) 

2. Provide unpaid support to an adult loved one (recently diagnosed with cancer, finished treatment and has not experienced recurrence) 

3. Worry that their loved one’s cacer may come back 

4. Willing to participate in online support group meetings with other women caregivers 

3. Purpose: to explore fear of cancer recurrence 

 

5. Cardiovascular and lifestyle risks in prostate cancer patients. 

1. Principle Investigator: Dr. Margot Davis, UBC and VCH Research Institute 

2. Eligibility: 

1. male aged 45+ with prostate cancer that was: 

2. diagnosed within the past year 

3. treated with ADT for the first time in the past 6 months 

4. will be treated with ADT for the first time within one month 

1. Purpose: To identify factors associated with the development of cardiovascular disease in men with prostate cancer 

 

6. iSTRIDE – A Distance-based, Randomized Controlled Trial for Reducing Sedentary Behavior among Prostate Cancer Survivors 

1. Principle Investigator: Dr. Linda Trinh, Univeristy of Toronto 

2. Eligibility: 

1. men diagnosed with prostate cancer 

1. 18+ y/o 

2. engaging in less than 150 minutes of physical activity a week 

3. not receiving radiation therapy 

1. Purpose: to develop an easy-to-use accessible, distance-based program to reduce sedentary behaviour and increase physical activity  in the hope of reducing side effects and improving quality of life for men with prostate cancer 

2. Incentive: $60 for participating in the entire study 

 

7. Investigating the impact of social supports, anxiety, depression, and coping on quality of life  in individuals with hereditary cancer conditions 

1. Principle Investigator: Diana Cooke, NUI Galway, Irish Cancer Society 

2. Eligibility: 

1. Have a confirmed hereditary cancer 

1. Purpose: To determine how social support, anxiety, depression, and coping may impact quality of life 

 

8. EXCEL: The EXercise for Cancer to Enhance Living Well (EXCEL) Study 

1. Principle Investigator: Dr. Nicole Culos-Reed, University of Calgary 

2. Eligibility: 

1. Undergoing or recovering from cancer treatment 

2. Rural or remote patients preferred 

1. Purpose: to implement exercise programs that allow rural and remote cancer patients to benefit from exercise as a self-management strategy to improve overall physical activity levels, health, and quality of life 

 

9. As always, active prostate cancer clinical trials in Canada may be found here 

1. Use the filters on the lefthand side of the page to further filter your results by province, age, study type, etc.  

問卷調查研究 - 華語為母語的人士在加拿大面對癌症期間如何得到心理上的支援 Survey study to investigate the use of psychosocial services by Chinese-speaking individuals during their cancer journeys

 

誠邀癌症患者/康復者及其家屬填寫問卷

您好：

我是林芷瑩 Erica Lam，一位就讀於卡加里大學 (University of Calgary) 的心理系學生。本人正在進行一項問卷調查研究，希望了解以華語為母語的人士在加拿大面對癌症期間如何得到心理上的支援。

現誠邀以下人士填寫需時8-10分鐘的問卷：

1. 你是癌症患者 / 康復者及你的母語是一種華語。
2. 你是癌症患者 / 康復者的伴侶、父母、兄弟姊妹或子女，而你認識的癌症患者 / 康復者的母語是華語。你的母語不須要是華語 。

所有參與者必須已年滿18歲或以上。

問卷連結：https://survey.ucalgary.ca/jfe/form/SV_6idW33JR9dzIRXE

謹隨函附上這項研究的傳單(見附件4C研究)及道德證明書(見附件文件1)。

本人致函貴組織，希望貴組織能轉發此郵件或把傳單透過email 或社交軟件發放給貴組織的成員及會員。如蒙應允，不勝感激。

如有任何查詢，可透過 erica.lam1@ucalgary.ca (郵件) 或 微信 eltyma18向林芷瑩 Erica Lam查詢。

Inviting cancer patients/survivors and their family members to fill out a survey

Hello,

My name is Erica Lam, a student in the Department of Psychology at the University of Calgary. I am conducting a survey study to investigate the use of psychosocial services by Chinese-speaking individuals during their cancer journeys.

Whom are we inviting to fill out the 8- to 10-minute survey: 

1. You are a cancer patient/survivor and your mother tongue is a Chinese language.
2. You are the spouse, parent, sibling, or child of a cancer patient/survivor whose mother tongue is Chinese. Your mother language does not have to be Chinese.

All participants must be 18 years of age and above.

Link to the survey: https://survey.ucalgary.ca/jfe/form/SV_6idW33JR9dzIRXE

Attached you will find a flyer about the study (see 4CStudy) and the ethics certificate (see Doc1).

I am hoping that your organization could share the recruitment advertisement with your members via email or social media or by forwarding this email. Your help would be much appreciated. 

If you have any questions or concerns, please contact Erica Lam directly at erica.lam1@ucalgary.ca or via WeChat at eltyma18. Thank you for your attention.  

Yours sincerely,

Erica Lam

Richmond Blue Walker Schedule 列治文「藍天健行」步行團時間表

    Extra Walking Days on November 29, 2022, Tuesday and December 1, Thursday, 

We will walk in Minoru Park, 7191 Granville Avenue, Richmond

9 am meet in front of the Grandstand of Minoru Track and Field

Please click here for the location of the meeting place

********************************************************

The Richmond Blue Walkers have walked 10km along the beautiful river dikes of Fraser River in 2 hours (9-11 am) every Tuesday/Thursday since 2017. We have a new walking route schedule after 5 years. Please join in or drop by to say hello:

從2017年開始，我們每個星期二/星期四(上午9-11)在2個小時內走10公里，5年後的今天我們有一個新的步行路線時間表，歡迎參加或請你前來打個招呼：

  

Meeting places:

On the 1st and 2nd weeks of the month, please meet at the "Terra Nova Public Washroom" parking lot. 

每月第1、2週請在 “Terra Nova公共洗手間” 停車場集合。

The 3rd and 4th weeks are at "Garry Point Park Parking Area". (The 5^th week TBA) 

第 3、4 週在 “Garry Point 公園停車場” 集合。(第 5 週容後公佈) 

You may find the meeting place by entering the above address on Google Map.

十一月至十二月實體講座與Zoom網上視像會議同時舉行 In-person & Zoom Meeting Nov-Dec 2022

列治文華人前列腺癌支援網絡健康講座

十一月至十二月實體講座與Zoom網上視像會議同時舉行

11月10日(星期四）觀察等待治療 與 積極監測 (Watchful Waiting vs Active Surveillance) (粵語健康講座) (中英文投影片) 

12月8日(星期四）ADT治療 (賀爾蒙/激素治療) (英語健康講座) (中英文投影片) 

時間: 晚上6:30-8:30

地點: 列治文明納中心 (Minoru Seniors Centre)

查詢: 604-836-6423 

網址: www.ChineseProstate.com

持有 Richmond Facility Pass 者免費參加 www.minorucentre.ca/seniors-services/seniors-facility-pass-activities/

Richmond Prostate Cancer Support Group has monthly in-person and zoom meetings on the second Thursday of November and December 2022. from 6:30 pm to 8:30 pm:

November 10, 2022: Watchful Waiting vs Active Surveillance

Watch an English video with a Chinese discussion

December 8, 2022: ADT treatment (Androgen Deprivation Therapy)

English presentation by Dr Richard Wassersug with English/Chinese PowerPoint slideshow

In-person meeting place at Seniors Centre of Minoru Centre for Active Living, 7191 Granville Avenue, Richmond, BC V6Y 1N9 (Multipurpose Room 1/1033)

Free admission for the holders of Richmond Seniors Facility Pass.

Join Zoom Meeting

https://us02web.zoom.us/j/89187020670?pwd=ZHgzd3Nyd0cxSkpkRTVxekY4NlVmdz09

Meeting ID: 891 8702 0670   Passcode: 800035

One tap mobile in Vancouver  +17789072071,,89187020670#,,,,*800035# Canada

Dial by your location:

        +1 438 809 7799 Canada

        +1 587 328 1099 Canada

        +1 647 374 4685 Canada

        +1 647 558 0588 Canada

        +1 778 907 2071 Canada

        +1 780 666 0144 Canada

        +1 204 272 7920 Canada

Meeting ID: 891 8702 0670 Passcode: 800035

Find your local number: https://us02web.zoom.us/u/kemooHeZ01

September is Prostate Cancer Awareness Month 九月是前列腺癌關注月

各位朋友，每年的九月份是北美洲的前列腺癌關注月！

請大家留意資訊保持自己的身心健康，也可以幫助親友面對以下疾病。

所有年齡男仕都會經歷過前列腺發炎(Prostatitis)；50歲以上可能會患上良性前列腺肥大症(Benign Prostatic Hyperplasia, BPH or Benign Prostate Enlargement, BPE)，影响排尿，睡眠和性生活，請立刻約見家庭醫生。

每八個加拿大男人更會有一個遇上前列腺癌(Prostate Cancer)，初期是毫無徵狀的，當這個疾病發展至中後期才會有類似以上兩種良性疾病的徵狀。

如要在早期診斷前列腺癌並獲得適當護理，就必需在50歲開始由家庭醫生每年探肛檢查(DRE)，並每5年抽血測試前列腺特異抗原(PSA)。

若要瞭解前列腺的變化，可免費下載閱讀這書(Understanding Prostate Changes)的中文版。或到我們網站(www.ChineseProstate.com)查看有關資訊。

當你的針刺活組織檢查(Biopsy)確診前列腺癌時，請立刻與溫哥華沿岸衛生局的 Prostate Cancer Supportive Care Program (PCSC) 聯絡，參加面談或小組(可要求免費國粵語翻譯)，以瞭解各種不同的治療方法和如何減輕隨之而來的副作用。

歡迎參加每月第二星期四下午6時半，在列治文明納健康活動中心舉行的

前列腺癌支援網絡，詳情可致電 Daniel Leung 604-836-6423查詢。

九月八日，星期四，下午6:30-8:30 專題講座是 盆底物理治療 (凱格爾理療) Pelvic Floor Physiotherapy (Kegel Physiotherapy) ，講員是 Envision Physiotherapy 資深註冊物理治療師 Marcy Dayan BSR, MHA ，泌尿系統因前列腺疾病引致小便失禁者，務必參加這英語講座，附中英對照投影片，歡迎國粵語提問。

十月十三日，星期四，下午6:30-8:30 專題講座是 瞭解格里森分數 (Understanding Gleason Scores)，講員是列治文前列腺癌支援網絡義務顧問 余威廉博士, 註册護士，當活組織檢查確診前列腺癌時，專科醫生會按照格里森指數的程度决定你的治療方案。粤語講座，附中英對照投影片，歡迎中英語提問。

September is Prostate Cancer Awareness Month in North America!

Please pay attention to the information to maintain your physical and mental health, and you can also help your relatives and friends to face the following diseases.

Men of all ages experience Prostatitis; over 50 may develop Benign Prostatic Hyperplasia (BPH or Enlargement), which affects urination, sleep and sexual life. Please make an appointment with your family doctor as soon as possible.

One out of every eight Canadian men will have Prostate Cancer, which is asymptomatic in the early stage. It will develop symptoms similar to the above two benign diseases when the disease develops to the middle and late stages.

To diagnose prostate cancer early and receive proper care, annual Digital Rectal Examinations (DRE) starting at age 50 by a family doctor and blood tests for Prostate Specific Antigen (PSA) every 5 years are necessary.

To understand changes in the prostate, you can download and read the book Understanding Prostate Changes for free. For the Chinese version of this book and relevant information, please visit our website www.ChineseProstate.com.

When you have a Biopsy diagnosis of prostate cancer, contact Vancouver Coastal Health's Prostate Cancer Supportive Care Program (PCSC) immediately for an interview or group meeting (free Chinese translation available on request) to learn about the different treatments and how to treat the side effects that come with it.

You are welcome to join the Richmond Prostate Cancer Support Group 

at 6:30 pm on the second Thursday of every month 

at the Richmond Minoru Seniors Center, 7191 Granville Ave. 

For details, please call Daniel Leung at 604-836-6423. We speak English, Cantonese and Mandarin.

September 8, 2022, Thursday 6:30 pm - 8:30 pm

Pelvic Floor Physiotherapy (Kegel Physiotherapy) 

English presentation by Marcy Dayan BSR, MHA  of Envision Physiotherapy

October 13, 2022, Thursday 6:30 pm - 8:30 pm 

Understanding Gleason Scores  

Cantonese presentation by Wellam Yu Ko, RN, PhD our Volunteer advisor since 2013

2022 Prostate Cancer Virtual Conference

A 2-day conference and expo for support groups leaders and the larger community to learn more about prostate cancer - the #1 cancer in men.

Sep 17, 2022 09:00 AM to Sep 18, 2022 03:59 PM

For the free-of-charge event, please register now!