Research studies and surveys | October 2022

 Research studies and surveys | October 2022 

These studies are shared within the support group newsletter, Your Monthly Debrief.

 

1. Survey on patient perspectives on Active Surveillance  -  

1. Investigators: AnCan Virtual Active Surveillance Support Group, Active Surveillance Patients International, Prostate Cancer Support Canada, and The Active Surveillor Newsletter 

2. Eligibility:  

1. Must have been diagnosed with prostate cancer 

3. Purpose: to inform professional medical bodies and key influencers about our PATIENT views on the Active Surveillance treatment protocol 

 

2. Journey mapping radiation therapy in older adults with cancer through patient-reported outcomes 

1. Principle investigator: Dr. Jae-Yung Kwon at the University of Victoria 

1. Eligibility:  

1. must be a resident of BC 

2. over 65 y/o 

3. have received radiation therapy as a cancer treatment 

2. Purpose: to help create “journey maps” (visualizations of patients’ stories and healthcare service encounters over time) which will be used to help inform the development of resources for clinicians 

1. Incentive: $50 gift card 

 

3. COMPASS Study – Sexual quality-of-life questionnaire 

1. Principle Investigator: Dr. Bernard Lee, UBC and BC Cancer  

2. Eligibility:  

1. 40-75 y/o 

2. previous sexual experience with men 

3. diagnosis of prostate cancer 

4. currently on active surveillance, or previously treated with surgery, external beam radiation, or brachytherapy, with/without hormone therapy 

1. Purpose: to improve prostate cancer treatment outcomes for other queer men   

1. Incentive: 1 in 5 chance of winning a $100 USD gift card 

 

4. Managing your fear of cancer recurrence: A research study for Canadian family caregivers 

1. Principle Investigator: Dr. Sophie Lebel and Dr. Rinat Nissim (U Ottawa, UHN) 

2. Eligibility: 

1. Canadian women (18 y/o+) 

2. Provide unpaid support to an adult loved one (recently diagnosed with cancer, finished treatment and has not experienced recurrence) 

3. Worry that their loved one’s cacer may come back 

4. Willing to participate in online support group meetings with other women caregivers 

3. Purpose: to explore fear of cancer recurrence 

 

5. Cardiovascular and lifestyle risks in prostate cancer patients. 

1. Principle Investigator: Dr. Margot Davis, UBC and VCH Research Institute 

2. Eligibility: 

1. male aged 45+ with prostate cancer that was: 

2. diagnosed within the past year 

3. treated with ADT for the first time in the past 6 months 

4. will be treated with ADT for the first time within one month 

1. Purpose: To identify factors associated with the development of cardiovascular disease in men with prostate cancer 

 

6. iSTRIDE – A Distance-based, Randomized Controlled Trial for Reducing Sedentary Behavior among Prostate Cancer Survivors 

1. Principle Investigator: Dr. Linda Trinh, Univeristy of Toronto 

2. Eligibility: 

1. men diagnosed with prostate cancer 

1. 18+ y/o 

2. engaging in less than 150 minutes of physical activity a week 

3. not receiving radiation therapy 

1. Purpose: to develop an easy-to-use accessible, distance-based program to reduce sedentary behaviour and increase physical activity  in the hope of reducing side effects and improving quality of life for men with prostate cancer 

2. Incentive: $60 for participating in the entire study 

 

7. Investigating the impact of social supports, anxiety, depression, and coping on quality of life  in individuals with hereditary cancer conditions 

1. Principle Investigator: Diana Cooke, NUI Galway, Irish Cancer Society 

2. Eligibility: 

1. Have a confirmed hereditary cancer 

1. Purpose: To determine how social support, anxiety, depression, and coping may impact quality of life 

 

8. EXCEL: The EXercise for Cancer to Enhance Living Well (EXCEL) Study 

1. Principle Investigator: Dr. Nicole Culos-Reed, University of Calgary 

2. Eligibility: 

1. Undergoing or recovering from cancer treatment 

2. Rural or remote patients preferred 

1. Purpose: to implement exercise programs that allow rural and remote cancer patients to benefit from exercise as a self-management strategy to improve overall physical activity levels, health, and quality of life 

 

9. As always, active prostate cancer clinical trials in Canada may be found here 

1. Use the filters on the lefthand side of the page to further filter your results by province, age, study type, etc.